I know, today is supposed to be about finance. But today is about my son. In fact, everyday for the past few weeks have been about my son JJ.
He has sadly begun ruminating again. I cannot express how my heart aches at the thought of this. Mostly because everything out there puts the blame on the relationship between mother and child for it happening. Mostly because there is such a high mortality rate. And mostly because he is killing himself and I don't understand why. I have given my life to this child. I have been separated from my family for this child. I have gone weeks without sleep for this child. And I would do it all again in a heartbeat for my child whom God has blessed us with. But I don't know why this is happening again.
I know that might sound strange to some. How can a child who is so sick that you are killing yourself for be a blessing? God says ALL children are a blessing. And if you met JJ, you would know that life would be incomplete and sorrowful without him.
None of the doctors in our city know anything about rumination syndrome. And even the doctor who was assigned JJ in the hospital knows nothing about it. In fact, I highly doubt she believes that JJ has rumination syndrome. I am going to be starting another blog about JJ and his journey and will link back in this post to the new blog. But I will be taking off a week from blogging on this blog to do so.
Not to mention there are only a handful of doctors in the COUNTRY that treat rumination syndrome. Thankfully, one lives only an hour's drive away (Teri, we might have more opportunity to meet now than you think). Our insurance does not cover it, which means a lot of petitions to the insurance company.
Your prayers are appreciated.
UPDATED - Link to the rumination site:
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